Resources
Family Caregiver
The Family Caregiver; A Guide to Doctor Visits
Doctor visits can often be a source of conflict between patients and their family caregivers, who may have different ideas about the things to discuss with the doctor. This guide, from the United Hospital Fund, provides practical tips to help patients and family caregivers coordinate agendas before an appointment and to communicate effectively together during the doctor visit – tips that will help avoid conflict as well as get the most out of the encounter with the doctor.
Home Safety Video from the Family Caregiver Alliance
Why You Might Be Left Out of a Relative’s Meeting with an Elder Law Attorney
When you bring a family member or friend to meet with an elder law attorney, you might expect to sit in on the consultation. However, elder law attorneys need to meet with their clients alone for at least part of the consultation, so be prepared to spend time in the waiting room.
Click here to read the brochure from the American Bar Association that explains The Four C’s of Elder Law Ethics.
Resources for those affected by Stroke
Careliving, a program from the National Stroke Association
Careliving is an online social network that allows caregivers and family members of stroke survivors to connect, share and support one another. Click here to download the publication.
Stroke Survivors Empowering Each Other (SSEEO)
Providing advocacy, support, education, and resources to stroke survivors and their families. Click here to learn more
Resource for Veterans
The Veterans Administration has established a National Caregiver Support Line for Caregivers of Veterans — spouses, children, other family members and friends of Veterans as well as Veterans themselves. The purpose of the support line is to provide a centralized location for information and support regarding providing care for a Veteran. The support line responders are licensed social workers who provide guidance, education on VA programs and benefits, information on community resources, and emotional support. When a Caregiver or Veteran needs additional assistance or a connection to their local VA medical center, a referral is made to their Caregiver Support Coordinator.
To reach the VA Caregiver Support Line call toll free 1.855.260.3274. Operating hours are Monday through Friday, 8 a.m. to 11 p.m., Eastern Standard Time and Saturday, 10:30 a.m. to 6 p.m., Eastern Standard Time.
Obtaining Local Resources
The Illinois Department on Aging contracts with local agencies to assist people locate resources and services. Click here for information on these agencies.
Healthcare Communication Board for Medical, Physical, and Emotional Information
For people who are unable to speak, this tool will assist with communication. Click here to download the publication. Click here to download the publication.
Tips for Caregivers of People with Dementia
Caring for a person with Alzheimer’s disease at home is a difficult task and can become overwhelming at times. Each day brings new challenges as the caregiver copes with changing levels of ability and new patterns of behavior. Research has shown that caregivers themselves often are at increased risk for depression and illness, especially if they do not receive adequate support from family, friends, and the community. Click here to download the publication.
A Guide for Families of People with Dementia Living in Care Facilities
The Alzheimer’s Association-Greater Illinois Chapter offers a free online resource, Encouraging Comfort Care: A Guide for Families of People with Dementia Living in Care Facilities. This 21-page booklet provides useful information to families and staff of long-term care facilities about Alzheimer’s disease and related dementias, particularly care issues related to the late and final stages.
For families, this guide will enable them to make informed choices about a variety of medical decisions they may face on behalf of loved ones with dementia living in nursing homes, assisted living facilities, and other types of care facilities. It will also equip families to ask good questions aimed at obtaining the best care for their loved ones, including a handy checklist of comfort care measures to be discussed with staff members of care facilities. Click here to download the publication.
Legal Planning for Living with a Chronic Medical Condition
In 1900, most people died younger from communicable diseases and after relatively short illnesses. Today, we are more likely to die older from one or more chronic conditions and after an extended period of illness. The decisions involved with planning for disability associated with chronic conditions can be difficult to make. Recognizing that developing a plan is the goal and that plans can (and should) be revised over time may help you assume a proactive role when it comes to legal matters. Click here to read an article, written by Janna Dutton, Certified Elder Law Attorney, regarding this important topic.